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Cancer Support

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Sparkly

(24,436 posts)
Sat Jan 4, 2025, 10:59 PM Jan 4

It's back. :( [View all]

Yesterday, I got the news I've been dreading: the high-grade serous endometrial cancer I battled with surgery, chemo, and radiation through 2023 - and since then with ongoing Herceptin infusions, scans, and tests to monitor - has metastasized to my lungs.

This puts me at Stage IV with a pretty dire prognosis. My oncologist is consulting other doctors about the risks of doing a needle biopsy for molecular analysis of the 'nodules' re: mutations (although I did have this in my first diagnosis, where genetic mutations were found - but Kaiser had sent me elsewhere, so something didn't transfer, I guess).

From there, I might repeat another six rounds of Carbo/Taxol, and lose my hair, eyelashes, and energy all over again -- to live how long? I know I shouldn't consult "Dr. Google," but it seems a matter of 5-12 months anyway, particularly if they don't do surgery. (And surgery has not been mentioned.)

I might just go straight to palliative care, but I have a baby granddaughter - a miracle! - and I want all the time I can to be with her and my daughter, to "put things in order," to write and record, to savor every minute and leave behind everything I can. The baby is 8 months old, so she will never remember me.

This is difficult. Life has given me many difficulties, so I'll find my way through this final one. (Meanwhile, please take good care of my husband, Stinky the Clown, and I hope you'll acknowledge whatever updates I, he, or we post as this goes forward.)

Meanwhile, I haven't told my daughter yet, and it weighs heavily on me. I want to tell her in person, but she's busy, taking the baby from place to place, working, managing her own healthcare needs... It's going to be extremely difficult for her to process, and I'm not sure how to spoon-feed it to her in small bites.

Thanks to all of you for 'being there' (meaning here, of course).

Sparkly (aka "Sparkly Fairy Princess," in my DU debut)

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It's back. :( [View all] Sparkly Jan 4 OP
I'm so sorry Sparkly. Owl Jan 4 #1
I'm so saddened to read of your dx SheltieLover Jan 4 #2
Very very upset2 news gor you. riverbendviewgal Jan 4 #3
I'm so sorry Sparkly. Bluethroughu Jan 4 #4
You and Stinky will be forever loves blm Jan 4 #5
Thanks, blm. It's been a long time, hasn't it? Sparkly Jan 5 #44
Yep. There's still a few dozen of us here. blm Jan 5 #48
That makes me feel better, somehow! Sparkly Jan 5 #59
😎🤓😎 blm Jan 5 #62
I'm sorry to read this. Just don't surrender without another fight. I think it's best to lay your sinkingfeeling Jan 4 #6
I agree with you. Sparkly Jan 5 #45
Im so sorry to hear this. Hugs. Vibes. onecaliberal Jan 4 #7
Sorry to hear your medical prognosis. magicarpet Jan 4 #8
Precious time shared with your husband, daughter and granddaughter Pachamama Jan 4 #9
That's absolutely in my plans. Sparkly Jan 5 #46
Definitely write about it. As much as you can. calimary Jan 5 #61
I'm so sorry. My thoughts are with the both of you. Solly Mack Jan 4 #10
I am sad for all of you. I understand how you want to spend your time. delisen Jan 4 #11
Sometimes, there are no words... Marie Marie Jan 4 #12
We are all sending good DU vibes your way. Nt spooky3 Jan 4 #13
:hug: :grouphug: elleng Jan 4 #14
Dammit 😔 FirstLight Jan 4 #15
I'm so sorry to hear this karin_sj Jan 4 #16
Thank you Sparkly Jan 5 #47
I'm so sorry. Dr. Shepper Jan 4 #17
I'm so sorry. I wish I could help. n/t Greybnk48 Jan 4 #18
My husband and i are almost mirroring you. Its tough and i wonder if the Karadeniz Jan 4 #19
Thanks. Sparkly Jan 5 #49
You are very brave soul and a thoughful parent Joinfortmill Jan 4 #20
Oh Sparkly. summer_in_TX Jan 4 #21
I'm sorry. cate94 Jan 5 #22
I am so sorry, Sparkly. sheshe2 Jan 5 #23
This is hard to hear... 2naSalit Jan 5 #24
... Kali Jan 5 #25
Gut wrenching news .. Jarqui Jan 5 #26
Exactly. Sparkly Jan 5 #50
Get more than one opinion Jarqui Jan 6 #63
Big Hug Sparkly proud patriot Jan 5 #27
Sometimes the fight Figarosmom Jan 5 #28
Wish I could fix this KT2000 Jan 5 #29
Holding you in my heart, Sparkly radical noodle Jan 5 #30
I am so sorry. My heart is breaking for you and your family. Dem2theMax Jan 5 #31
Thank you - that is important advice. Sparkly Jan 5 #51
Holding you and Stinky in love and light. Your DU family is here for both niyad Jan 5 #32
Many thanks, niyad. Sparkly Jan 5 #52
Whew IbogaProject Jan 5 #33
Thank you Sparkly Jan 5 #53
Hey sweetie - calimary Jan 5 #34
The moments are few. Sparkly Jan 5 #54
I'm so very sorry, Sparky. Sending skylucy Jan 5 #35
I'm so sorry to hear of this heartbreaking diagnosis. virgdem Jan 5 #36
So very sorry to read this, Sparkly Fairy Princess babylonsister Jan 5 #37
Thanks, babylonsister! Sparkly Jan 5 #55
And I of course remember you babylonsister Jan 7 #65
I am so sorry. murielm99 Jan 5 #38
I'm so sorry XanaDUer2 Jan 5 #39
Breakthrough medications tacksam Jan 5 #40
Thank you! Sparkly Jan 5 #56
Welcome to DU! KS Toronado Jan 5 #57
I'm so sorry, Sparkly. brer cat Jan 5 #41
I guess due to the recs I was able to see this - TBF Jan 5 #42
Hello, TBF Sparkly Jan 5 #58
-- Oh my goodness, thank you all so much for your replies, support, and care!! -- Sparkly Jan 5 #43
I am crying. Ferrets are Cool Jan 5 #60
That is horrific...so sorry 😢 Meowmee Jan 7 #64
I read these posts about your health BootinUp Jan 8 #66
With deepest sympathy, in no way meant to disallow an unexpected... NNadir Jan 9 #67
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