It's still 'sinking in.' I've arranged a time and place to break the terrible news to my daughter. One of my sisters is coming to visit this weekend.
I wrote a lot of questions to my doctor. ("Why not surgery?" "Are there clinical trials?" "Wasn't there genetic mutation information in the first analysis?" "Are we waiting for MRI results for my bone fractures before we get started, for some reason?"
Not that it's the most important thing except for morale including among the people around me, but I'm wondering again about trying a 'cool cap' to keep my hair. My infusion center has no such equipment though, so it'd involve dry ice and a lot of effort. Last time around, I did get a grant for this, but logistics made it impossible. I do have wigs (thanks to donations from neighbors and sisters), but they are so itchy and uncomfortable, I just wore caps. Any ideas or advice welcome.
I'm worried about how to spend each day, while I feel (and look) okay. Making videos for my granddaughter is a definite yes. Making an "advance directive," teaching Stinky how to do the e-banking, revisiting our wills, making a plan for my darling little demon of a dog. (Maybe I'll post something in the pet forum here!) Itemizing my library of books - some are valuable, some aren't, some were until the last dog destroyed them...
My thoughts are racing. It's hard to sleep. I'm sad, anxious, and feel guilty for having to leave people (and animals) who rely on me.
Again, thank you for being here for me! 
Edit history
Recommendations
3 members have recommended this reply (displayed in chronological order):
= new reply since forum marked as read