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Systemic Scleroderma [View all]
I was wondering if anyone on this forum (or their family member) might have scleroderma. My daughter was diagnosed with this condition last week after suffering for 9 months with swollen, painful hands and feet. I have spent many days crying because I understand this to be a fatal disease as it progresses but I can say for now that it has totally changed her personality. She has always been my crazy, fun-loving daughter and now she's in constant pain and I suffer with her. If you have any knowledge about this disease, I'd appreciate your insight. I have found a couple support groups online that I've joined but I'm seeking any and all resources.
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